DRAVET SYNDROME: TRANSITION FROM PEDIATRIC TO ADULT CARE

Released On
October 28, 2021

Expires On
October 28, 2022

Media Type
Internet

Completion Time
60 minutes

Specialty
Neurology, Pediatrics

Topic(s)
Epilepsy

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This activity is jointly provided by Global Education Group and Platform Q Health Education, LLC, in collaboration with the Dravet Syndrome Foundation and The National Organization for Rare Disorders, Inc.

 

This activity is supported by an educational grant from Zogenix, Inc.

Credit Available

  • Physicians — maximum of 1.0 AMA PRA Category 1 Credit(s)
  • Nurses — 1.0 Contact Hours

All other health care professionals completing this course will be issued a statement of participation.

Target Audience

The educational design of this activity addresses the needs of neurologists, pediatric neurologists, epileptologists, pediatric epileptologists, pediatricians, primary care providers, general practitioners, nurses, nurse practitioners, physician assistants, and pharmacists involved and/or interested in the management of patients with DS.

Statement of Need/Program Overview

The transition of care from a pediatric to an adult setting is an increasingly critical time in the management of Dravet syndrome (DS). Unfortunately, many who have been through the transition process express dissatisfaction with the quality of the experience and with outreach from providers. Clinicians need to be comfortable formulating an individualized transition plan for their patients and communicating with patients, caregivers, and families to ensure that the plan is understood and agreed upon.

Join an expert panel of clinicians and caregivers for an exploration of the transition from adolescent to adult care in DS. Faculty will review the timing of the transition process, the identification of appropriate clinicians to receive transitioning patients, and communication strategies to ensure patients and caregivers understand and are involved in the transition process. The importance of dedicated roles, such as a Transition Navigator, on the care team will also be discussed.

Learning Objectives

After completing this activity, the participant should be better able to:

  • Describe the consequences of a delayed diagnosis of DS such as in adults with DRE
  • Describe the unique seizure and nonā€seizure related needs of adult patients with DS
  • Devise strategies to address challenges related to transitioning from pediatric to adult multidisciplinary care
  • Identify tools and support groups to assist caregivers in providing care for an individual with DS and transitioning from pediatric to adult care

 

Faculty

M. Scott Perry, MD

Head of Neurosciences
Cook Children’s Medical Center

Danielle M. Andrade, MD, MSc, FRCPC, CSCN (EEG)

Professor of Medicine (Neurology)
Medical Director, Epilepsy Program
Director of Epilepsy Genetics Research Program
Director, Epilepsy Transition Program
University of Toronto

Veronica Hood, PhD

Scientific Director
Dravet Syndrome Foundation

Sharon Canino

Parent of an adult with Dravet syndrome

Physician Accreditation Statement

This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical Education (ACCME) through the joint providership of Global Education Group (Global) and PlatformQ Health Education, LLC. Global is accredited by the ACCME to provide continuing medical education for physicians.

Physician Credit Designation

Global Education Group designates this enduring material for a maximum of 1.0 AMA PRA Category 1 Credit™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Nursing Continuing Education

Global Education Group is accredited with distinction as a provider of nursing continuing professional development by the American Nurses Credentialing Center's Commission on Accreditation.

This educational activity for 1.0 contact hour is provided by Global Education Group. Nurses should claim only the credit commensurate with the extent of their participation in the activity.

Pharmacist Accreditation Statement

Global Education Group is accredited by the Accreditation Council for Pharmacy Education as a provider of continuing pharmacy education..

 

 

Credit Designation

Global Education Group designates this continuing education activity for 1.0 contact hour(s) (0.10 CEUs) of the Accreditation Council for Pharmacy Education. (Universal Activity Number - 0530-9999-21-170-H01-P) This is a knowledge-based activity.

Estimated Time to Complete

This activity should take approximately 60 minutes to complete

Instructions to Receive Credit

In order to receive credit for this activity, the participant must (1) read the target audience, learning objectives, and disclosure statements, (2) complete the educational activity online, and (3) complete the post-test and activity evaluation. To receive AMA PRA Category 1 Credits™, participants must receive a score of 70% on the post-test. For pharmacist/ACPE learners, please check the CPE monitor for your CE credit within 60 days of the activity.

Disclosures of Conflicts of Interest

Global Education Group (Global) adheres to the policies and guidelines, including the Standards for Integrity and Independence in Accredited CE, set forth to providers by the Accreditation Council for Continuing Medical Education (ACCME) and all other professional organizations, as applicable, stating those activities where continuing education credits are awarded must be balanced, independent, objective, and scientifically rigorous. All persons in a position to control the content of an accredited continuing education program provided by Global are required to disclose all financial relationships with any ineligible company within the past 24 months to Global. All financial relationships reported are identified as relevant and mitigated by Global in accordance with the Standards for Integrity and Independence in Accredited CE in advance of delivery of the activity to learners. The content of this activity was vetted by Global to assure objectivity and that the activity is free of commercial bias.

All relevant financial relationships have been mitigated.

The faculty have the following relevant financial relationships with ineligible companies:

M. Scott Perry, MD

  • Consulting Fee: Biomarin, Encoded, Greenwich biosciences, Neurelis, Stoke, Taysha, Zogenix
  • Contracted Research: Contracted Research: Encoded, Greenwich Biosciences, Marinus, Ovid, Stoke, Zogenix
  • Speakers’ Bureau: Greenwich Biosciences, Zogenix

Danielle M. Andrade, MD, MSc, FRCPC, CSCN (EEG)

  • Consulting Fee: Stoke Therapeutic
  • Honoraria: Biocodex
  • Speakers’ Bureau: Eisai
  • Investigator Initiated Grant: Biocodex, Zogenix

 

Veronica Hood, PhD has no financial relationships to disclose.

Sharon Canino has no financial relationships to disclose.

The planners and managers reported the following financial relationships or relationships to products or devices they or their spouse/life partner have with commercial interests related to the content of this CME activity:

Rhys Williams, RN, MSN, FNP has no financial relationships to disclose.

Lindsay Borvansky has no financial relationships to disclose.

Andrea Funk has no financial relationships to disclose.

Liddy Knight has no financial relationships to disclose.

Ashley Cann has no financial relationships to disclose.

Kim Rodriguez has no financial relationships to disclose.

Carole Drexel has no financial relationships to disclose.

Eve Wilson has no financial relationships to disclose.

Alissa Yost has no financial relationships to disclose.

Hardware/Software Requirements

Participants will need a computer with a recent version of Adobe Flash installed, as well as an internet connection sufficient for streaming media.

Fee Information & refund/Cancellation Policy

There is no fee for this educational activity.

Disclosure of Unlabeled Use

This educational activity may contain discussion of published and/or investigational uses of agents that are not indicated by the FDA. Global Education Group (Global) and PlatformQ Health Education, LLC do not recommend the use of any agent outside of the labeled indications.

The opinions expressed in the educational activity are those of the faculty and do not necessarily represent the views of any organization associated with this activity. Please refer to the official prescribing information for each product for discussion of approved indications, contraindications, and warnings.

Disclaimer

Participants have an implied responsibility to use the newly acquired information to enhance patient outcomes and their own professional development. The information presented in this activity is not meant to serve as a guideline for patient management. Any procedures, medications, or other courses of diagnosis or treatment discussed in this activity should not be used by clinicians without evaluation of patient conditions and possible contraindications on dangers in use, review of any applicable manufacturer’s product information, and comparison with recommendations of other authorities.

Contact Information

Accreditation Support:
For information about the accreditation of this program, please contact Global at 303-395-1782 or cme@globaleducationgroup.com.

Technical Support:
For any technical issues or issues with your CME Certificate, please contact NeuroSeriesLive at 877-394-1306 or at Support@NeuroSeriesLive.com.

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