Humanistic and Economic Burden of Dravet Syndrome: Multidisciplinary Approach to Recognize and Address
February 13, 2020
July 31, 2021
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This activity is jointly provided by Global Education Group and PlatformQ Health Education, LLC.
This activity is supported by an educational grant from Zogenix, Inc.
- Physicians — maximum of 1.0 AMA PRA Category 1 Credit(s)™
- Nurses — 1.0 Contact hour(s)
- Pharmacist — 1.0 Contact hour(s) (0.10 CEUs)
All other health care professionals completing this course will be issued a statement of participation.
The educational design of this activity addresses the needs of neurologists, pediatric neurologists, pediatricians and other health care professionals (including physicians, physicians-in-training, nurses, physician assistants, nurse practitioners, pharmacists, etc.) involved and/or interested in the management of patients with severe forms of pediatric intractable epilepsy.
Statement of Need/Program Overview
Dravet syndrome is a severe, intractable and difficult-to-manage epileptic syndrome, characterized by marked and prolonged clonic and tonic-clonic, generalized and unilateral seizures which progress to multiple seizure types, slowing development and cognitive abilities with comorbid behavioral disorders. Experts consider Dravet syndrome among the most challenging epilepsy syndromes to manage due to its intractable seizures, recurrent status epilepticus and intellectual disabilities. The significant burden of disease Dravet syndrome places on both patient and family/caregiver is profound. However, clinicians may not be intimately knowledgeable about its recognition, diagnosis, management and transition from pediatric to adult care and further limited on their recognition of the burden of disease and its adverse effects on quality-of-life in patients and families/caregivers dealing with Dravet syndrome and how best to address and support such individuals. Moreover, limited effective treatment options for Dravet syndrome adds to the clinical complexity of its management; newer, more effective treatment options are being investigated. Importantly, families/caregivers are often wholly unprepared to deal with the myriad of clinical and nonclinical issues that they will face on their journey. Accordingly, extensive education is needed to ensure that clinicians, families/caregivers have the resources they need to improve care and meet challenges throughout the continuum of care, from diagnosis, to treatment, to transition.
The activities comprising this educational initiative, of which this is the first, are altogether designed to improve knowledge and behaviors related to diagnosis, management, and overall care of Dravet syndrome and subsequently Lennox-Gastaut syndrome (LGS) while improving competence in their recognition, diagnosis, treatment and management of comorbidities and nonclinical issues. This activity will focus on the human and financial toll of caring for Dravet syndrome from both clinician and caregiver perspectives.
After completing this activity, the participant should be better able to:
- Recognize the psychosocial challenges and stress-related comorbidities of caregiving for a patient with Dravet syndrome
- Explain why taking a multidisciplinary approach to addressing the needs of parents and siblings of patients with Dravet syndrome, is more meaningful including identification of sources of psychosocial support, caregiver/sibling relief, wellness interventions
Kelly G. Knupp, MD, MSCSAssociate Professor of Pediatrics and Neurology
University of Colorado, Anschutz Medical Campus
Dagmar Amtmann, PhD
University of Washington, Seattle
Department of Rehabilitation Medicine
Nicole Villas, MEd
Board President/Scientific Director
Dravet Syndrome Foundation
Meghan Wilson, BS
Parent of Child with Dravet Syndrome
Physician Accreditation Statement
This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical Education (ACCME) through the joint providership of Global Education Group (Global) and PlatformQ Health Education, LLC. Global is accredited by the ACCME to provide continuing medical education for physicians.
Physician Credit Designation
Global Education Group designates this enduring activity for a maximum of 1.0 AMA PRA Category 1 Credit™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.
Nursing Continuing Education
Global Education Group is accredited with distinction as a provider of nursing continuing professional development by the American Nurses Credentialing Center's Commission on Accreditation.
This educational activity for 1.0 contact hours is provided by Global Education Group. Nurses should claim only the credit commensurate with the extent of their participation in the activity.
Pharmacist Accreditation Statement
Global Education Group is accredited by the Accreditation Council for Pharmacy Education as a provider of continuing pharmacy education.
Global Education Group designates this continuing education activity for 1.0 contact hour(s) (0.10 CEUs) of the Accreditation Council for Pharmacy Education. (Universal Activity Number - 0530-9999-20-003-H01-P)
Type of Activity
Disclosures of Conflicts of Interest
Global Education Group (Global) requires instructors, planners, managers and other individuals and their spouse/life partner who are in a position to control the content of this activity to disclose any real or apparent conflict of interest they may have as related to the content of this activity. All identified conflicts of interest are thoroughly vetted by Global for fair balance, scientific objectivity of studies mentioned in the materials or used as the basis for content, and appropriateness of patient care recommendations.
Disclosure of Financial Relationships
The faculty reported the following financial relationships or relationships to products or devices they or their spouse/life partner have with commercial interests related to the content of this CME activity:
Kelly G. Knupp, MD, MSCS
- Grant/Research Support: West Therapeutics, Zogenix
- Honoraria: Zogenix
- Advisory Board: Biocodex, Biomartin, GW pharma (DSMB member), Zogenix
Dagmar Amtmann, PhD
- Consultant/Independent Contractor: Zogenix
- Grant/Research Support:: Zogenix (research grant support to university)
Nicole Villas, MEd
- Nothing to disclose
Meghan Wilson, BS
- Nothing to disclose
The planners and managers reported the following financial relationships or relationships to products or devices they or their spouse/life partner have with commercial interests related to the content of this CME activity:
- Ashley Marostica, RN, MSN: Nothing to disclose
- Lindsay Borvansky: Nothing to disclose
- Andrea Funk: Nothing to disclose
- Liddy Knight: Nothing to disclose
- Ashley Cann: Nothing to disclose
- David Howard: Nothing to disclose
- Alissa Yost: Nothing to disclose
Disclosure of Unlabeled Use
This educational activity may contain discussion of published and/or investigational uses of agents that are not indicated by the FDA. Global Education Group (Global) and PlatformQ Health, Inc. do not recommend the use of any agent outside of the labeled indications.
The opinions expressed in the educational activity are those of the faculty and do not necessarily represent the views of any organization associated with this activity. Please refer to the official prescribing information for each product for discussion of approved indications, contraindications, and warnings.
Instructions to Receive Credit
In order to receive credit for this activity, the participant must (1) read the target audience, learning objectives, and disclosure statements, (2) complete the educational activity online, and (3) complete the post-test and activity evaluation. To receive AMA PRA Category 1 Credits™, participants must receive a minimum score of 70% on the post-test. For pharmacist/ACPE learners, please check the CPE monitor for your CE credit within 60 days of the activity.
Course Viewing Requirements
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Google Chrome 28.0+ for Windows, Mac OS, or Linux
Mozilla Firefox 23.0+ for Windows, Mac OS, or Linux
Safari 6.0+ for Mac OSX 10.7 and above
Supported Phones & Tablets:
Android 4.0.3 and above
iPhone/iPad with iOS 6.1 or above.
Participants have an implied responsibility to use the newly acquired information to enhance patient outcomes and their own professional development. The information presented in this activity is not meant to serve as a guideline for patient management. Any procedures, medications, or other courses of diagnosis or treatment discussed in this activity should not be used by clinicians without evaluation of patient conditions and possible contraindications on dangers in use, review of any applicable manufacturer’s product information, and comparison with recommendations of other authorities.
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